Opsoclonus-Myoclonus Syndrome

Synonyms

• Myoclonic Encephalopathy, Kinsbourne Type
• Opsoclonic Encephalopathy
• Kinsbourne Syndrome
• Dancing Eyes-Dancing Feet

Disorder Subdivisions

• None

General Discussion

Opsoclonus-myoclonus syndrome is a rare movement disorder. It is characterized by associated ocular, behavioral, sleep, and language disturbances. The onset is usually abrupt, often severe, and can become chronic.

Resources

Opsoclonus-Myoclonus Support Network, Inc.

4616 Brookwood St. NE

Albuquerque, NM 87109

USA

Tel: (505)881-2285

Email: sandragreenberg@hotmail.com

Internet: www.geocities.com/opso-myoclonus



National Institute of Neurological Disorders and Stroke (NINDS)

31 Center Drive

8A07

Bethesda, MD 20892-2540

Tel: (301)496-5751

Fax: (301)402-2186

Tel: (800)352-9424

Email: braininfo@ninds.nih.gov

Internet: http://www.ninds.nih.gov/



National Pediatric Myoclonus Center

SIU School of Medicine

Dept. of Neurology, Div. of Ped. Neurology

PO Box 19643

Springfield, IL 62794-9643

USA

Tel: (217)545-7635

Fax: (217)545-1903

Email: oms@siumed.edu

Internet: http://www.omsusa.org



Dancing Eye Syndrome Support Trust

78 Quantock Road

Worthing

West Sussex, Intl BN13 2HQ

United Kingdom

Tel: 01903 532383

Fax: 01903 532383

Email: support@dancingeyes.org.uk

Internet: http://www.dancingeyes.org.uk



MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network

150 Custer Court

Green Bay, WI 54301-1243

USA

Tel: (920)336-5333

Fax: (920)339-0995

Tel: (877)336-5333

Email: mums@netnet.net

Internet: http://www.netnet.net/mums/

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  4/5/2009

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