Hepatitis, Neonatal, Idiopathic

Synonyms

• INH
• neonatal giant cell hepatitis
• idiopathic neonatal hepatitis syndrome

Disorder Subdivisions

• None

General Discussion

Idiopathic neonatal hepatitis is a general term for inflammation of the liver (hepatitis) that occurs shortly after birth in newborns. Neonatal hepatitis may be caused by viruses, certain metabolic disorders, and other rare diseases that affect or impair the function of the liver. In some children, the cause of liver inflammation is unknown - these cases are referred to as idiopathic neonatal hepatitis (INH). The symptoms of idiopathic neonatal hepatitis may vary greatly from one individual to another. Symptoms common to liver disease often occur including yellowing of the whites of the eyes and the skin (jaundice), enlargement of the liver (hepatomegaly) and unusually dark urine. Most individuals with idiopathic neonatal hepatitis fully recover from the condition.

Resources

March of Dimes Birth Defects Foundation

1275 Mamaroneck Avenue

White Plains, NY 10605

Tel: (914)997-4488

Fax: (914)997-4763

Tel: (888)663-4637

Email: Askus@marchofdimes.com

Internet: http://www.marchofdimes.com



American Liver Foundation

39 Broadway, Suite 2700

New York, NY 10006

USA

Fax: (212)483-8179

Tel: (800)465-4837

Email: http://www.liverfoundation.org/contact/

Internet: http://www.liverfoundation.org



NIH/National Institute of Diabetes, Digestive & Kidney Diseases

Office of Communications & Public Liaison

Bldg 31, Rm 9A06

31 Center Drive, MSC 2560

Bethesda, MD 20892-2560

Tel: (301)496-3583

Email: NDDIC@info.niddk.nih.gov

Internet: http://www2.niddk.nih.gov/



Children's Liver Disease Foundation

36 Great Charles Street

Birmingham, Intl B3 3JY

United Kingdom

Tel: +44 (0) 121 212 3839

Fax: +44 (0) 121 212 4300

Email: info@childliverdisease.org

Internet: http://www.childliverdisease.org



Canadian Liver Foundation

2235 Sheppard Avenue

Suite 1500

Toronto, Ontario, Intl M2J 5B5

Canada

Tel: (416) 491-3353

Fax: (416) 491-4952

Tel: (800) 563-5483

Email: clf@liver.ca

Internet: http://www.liver.ca



Hepatitis Foundation International

504 Blick Drive

Silver Spring, MD 20904

Tel: (301)622-4200

Fax: (301)622-4702

Tel: (800)891-0707

Email: hfi@comcast.net

Internet: http://www.hepatitisfoundation.org



British Liver Trust

2 Southampton Road

Ringwood, Intl BH24 1HY

United Kingdom

Tel: 01425 481320

Fax: 01425 481335

Tel: 0800 652 7330

Email: info@britishlivertrust.org.uk

Internet: http://www.britishlivertrust.org.uk



MUMS National Parent-to-Parent Network

150 Custer Court

Green Bay, WI 54301-1243

USA

Tel: (920)336-5333

Fax: (920)339-0995

Tel: (877)336-5333

Email: mums@netnet.net

Internet: http://www.netnet.net/mums/



Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Email: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx

Internet: http://rarediseases.info.nih.gov/GARD



Madisons Foundation

PO Box 241956

Los Angeles, CA 90024

Tel: (310)264-0826

Fax: (310)264-4766

Email: getinfo@madisonsfoundation.org

Internet: http://www.madisonsfoundation.org



CORE

3 St. Andrews Place

London, NW1 4LB

UK

Tel: 020 7486 0341

Fax: 020 7224 2012

Email: info@corecharity.org.uk

Internet: http://www.corecharity.org.uk



Childhood Liver Disease Research and Education Network

c/o Joan M. Hines, Research Administrator; The Children's Hospital

13123 E 16th Ave.

B290

Aurora, CO 80045

Tel: (720)777-2598

Fax: (720)777-7351

Email: hines.joan@tchden.org

Internet: http://www.childrennetwork.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  5/25/2008

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