Gardner Syndrome

Synonyms

• Bone Tumor-Epidermoid Cyst-Polyposis
• Familial Adenomatous Polyposis with Extraintestinal Manifestations
• FAPG
• GRS
• Intestinal Polyposis III
• Oldfield Syndrome
• Polyposis, Gardner Type
• Polyposis-Osteomatosis-Epidermoid Cyst Syndrome

Disorder Subdivisions

• None

General Discussion

Gardner syndrome is a rare, inherited disorder characterized by multiple growths (polyps) in the colon (often 1,000 or more), extra teeth (supernumerary), bony tumors of the skull (osteomas), and fatty cysts and/or fibrous tumors in the skin (fibromas or epithelial cysts). Gardner syndrome is a variant of familial adenomatous polyposis, a rare group of disorders characterized by the growth of multiple polyps in the colon. Gardner syndrome is inherited as an autosomal dominant trait.

.

Resources

Intestinal Multiple Polyposis and Colorectal Cancer Registry

P.O. Box 11

Conyngham, PA 18219

Tel: (717)788-3712

Fax: (717)788-4046

Email: user291524@aol.com



American Cancer Society, Inc.

1599 Clifton Road NE

Atlanta, GA 30329

USA

Tel: (404)320-3333

Tel: (800)227-2345

Internet: http://www.cancer.org



Familial Polyposis Registry

Department of Colorectal Surgery

Cleveland Clinic Foundation

9500 Euclid Avenue

Cleveland, OH 44195-5001

Tel: (216)444-6470



NIH/National Institute of Diabetes, Digestive & Kidney Diseases

Endocrine Diseases Metabolic Diseases Branch

2 Information Way

Bethesda, MD 20892-3570

Tel: (301)654-3810

Fax: (301)496-7422

Email: NDDIC@info.niddk.nih.gov

Internet: http://www.niddk.nih.gov



MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network

150 Custer Court

Green Bay, WI 54301-1243

USA

Tel: (920)336-5333

Fax: (920)339-0995

Tel: (877)336-5333

Email: mums@netnet.net

Internet: http://www.netnet.net/mums/



Friends of Cancer Research

2231 Crystal Drive

Suite 200

Arlington, VA 22202

Tel: (703)302-1503

Fax: (703)302-1568

Email: info@focr.org

Internet: http://www.focr.org



Cancer.Net

American Society of Clinical Oncology

2318 Mill Road

Suite 800

Alexandria, VA 22314

Tel: (571)483-1780

Fax: (571)366-9537

Tel: (888)651-3038

Email: contactus@cancer.net

Internet: http://www.cancer.net/patient



Wellness Community

919 18th Street N.W.

Suite 54

Washington, DC 20006

Tel: (202)659-9709

Fax: (202)659-9301

Tel: (888)793-9355

Email: help@thewellnesscommunity.org

Internet: http://www.thewellnesscommunity.org



Desmoid Tumor Research Foundation

P.O. Box 273

Suffern, NY 10901

Tel: (914)262-6595

Fax: (845)369-8302

Email: info@dtrf.org

Internet: http://www.dtrf.org



Lance Armstrong Foundation

PO Box 161550

Austin, TX 78716-1150

Tel: (512)236-8820

Fax: (512)236-8482

Tel: (866)235-7205

Internet: http://www.livestrong.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  4/16/2008

Copyright  1986, 1987, 1988, 1990, 1994, 1999, 2000 National Organization for Rare Disorders, Inc.