A Biologic Drug Helped Me Conquer Rheumatoid Arthritis

Kathy Lubbers, 45, the daughter of former Speaker of the House Newt Gingrich and the president and CEO of his public relations firm, Gingrich Communications, has had rheumatoid arthritis for more than 20 years. For 15 of those years, she experienced crippling pain, even setting up an office in her bedroom because moving was unbearable. She finally received a new treatment, which changed her life, and she's now strong enough to work out, travel, and even walk marathons.


kathy-lubbers
Kathy Lubbers's energy and mobility improved with a biologic. Shes recently walked two marathons.
KATHY LUBBERS
I have had rheumatoid arthritis (RA) for more than 20 years. When I was 24, like so many people with RA, I was misdiagnosed. I had been living with the skin disease discoid lupus since I was 14, and my doctor just assumed my new symptoms—chronic fatigue, achy joints, and full-body pain—meant that I had developed systemic lupus.

When I moved to North Carolina 18 months later and talked to my new doctor about my lupus, he said, “Honey, you dont have lupus, you have rheumatoid arthritis.” I was thrilled! While painful, RA is an easier disease to deal with on a day-to-day basis.

I was initially treated with anti-inflammatory drugs. At one point, I was taking up to 12 aspirin a day, but my ears were ringing. My doctors said, “Oops! Thats a problem.” They took me off aspirin and I embarked on a 15-year cycle of experimentation with different anti-inflammatories and disease-modifying antirheumatic drugs (DMARDs).

The ups and downs of treatment
I hated taking the drugs and didnt appreciate the importance of trying to impact the progression of the disease and the joint deformity that can happen with RA. My doctor would put me on a path of medication and I wouldnt follow it. He and I had a love-hate relationship. I wouldnt go in to see him because I didnt want to take the drugs. I can be stubborn, but I was also in denial that I had a chronic disease that I needed to manage.

The drugs were helping me control my pain—but barely. I owned a coffee-roasting business, and work was physically demanding. But quitting wasnt an option. I was terrified of having a 9-to-5 job where I would have to get up, wear panty hose and high heels, and arrive early in the day.

My husband had to help me brush my teeth and dye my hair. My hair was short because I couldnt wash it very much. For a year, I could only wear tennis shoes—anything else was too painful.

Living in my bedroom because moving was unbearable
Eight years ago, I became the president and CEO of Gingrich Communications. Because I had the flexibility, my desk was in my bedroom—two steps from my bed. Some days that was too far. I would work from bed and take naps. I never got out of my pajamas and traveled as little as possible.

My ability to function was decreasing every day.


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Last Updated: November 18, 2009

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