Last updated: Oct 01, 2008
(VICTORIA GARDNER NYE)
I had a wonderful friend whom I went to crying one day. He looked at me, knowing full well that I had psoriasis and what it was. He stood up and yelled, “Oh my gosh, you have psoriasis!” and ran down the hallway screaming, which made me laugh. And I thought, Well, there you go. It's not going to get easier, so I need to live with it.
Up until three years ago, I had never interacted with other people with psoriasis, besides my mother. I became a patient advocate because I got tired of whining to myselfmy pity party of one. In 2005, I saw that the National Psoriasis Foundation (NPF) was sending people to Capitol Hill to push for more research and better treatments. I decided I should go and do something instead of sitting around all day. So I went.
How I handle it when people are rude
In Target the other day, a shorter woman was trying to reach a pack of gum. I asked her if she wanted me to reach it for her. She said, “Oh yes, thank you very much.” So with my hand that has psoriasis on it, I took the pack of gum and set it down in front of her. She looked at my hand, looked at me, and looked at the gum. She sort of smiled meekly, picked up the gum with a piece of clothing, andIm not kidding youhanded the piece of clothing to her friend and swapped out the gum for another pack. I was flabbergasted.
5 Ways to Handle Stigma
How to educate others and live with dignity Read more
Ive actually been in and out of therapy since I was diagnosed. Therapy helped me to learn that its OK for me to be unhappy about psoriasis sometimes. I cant beat myself up about it. Youre allowed to have a horrible, bad day, and to want to throw things at the wall, and to be pissed off about it. Its important to have that. If you dont, it can cycle into depression. So go ahead and get pissed, throw things at the wall. Yell at the TV. Get it out of your system, because if you dont, its just going to sit there.